Chinhu Chinokosha Kubudirira Kwekudyara mukudzivirira, yakanaka 'bhizinesi kesi' uye nekungwarira kuverenga kwemitengo uye mabhenefiti. Kuratidza kubatsirwa uye kuwedzera kukanganisa kwekudzivirira, cheni yese yevanobatanidzwa inofanirwa kuve nechekuita.

Chinangwa

High cholesterol inogona kuva nhaka, Family Hypercholesterolemia (FH) akadaidzwa. MuNetherlands 1 pa 240 vanhu nhaka iyi. Izvi zvinoita approx 70.000 vanhu. Iwe unoona cholesterol yakawandisa (pakutanga) hapana. Izvi zvinoreva kuti munhu ane FH kazhinji haauye kuna chiremba mukuru kana nyanzvi nechikumbiro chekuchengeta. Kuburikidza chete nekuonekwa kwakasimba ndipo mhuri dzeFH uye varwere vasina kuongororwa FH vanogona kumepurwa.

Kuongororwa nenguva uye kurapwa kwakakosha kune varwere vane FH. Pamberi pazvo 20^{Muchidimbu, fomu rakarongwa harienderane nemaitiro aripo ezvidzidzo zvesainzi} makore ezera, yakakomba arteriosclerosis inogona kuitika isingaoneki. Nekuda kweizvi kune njodzi yakanyanya yemoyo- chirwere. Nekutanga kuongororwa uye kurapwa kwakaringana, avhareji yemurwere weFH anowana makore gumi nerimwe ehupenyu ane hutano.

Mumakore achangopfuura, mapato akati wandei akaedza kutsvaga vanhu vane FH. Izvi zvakakonzera LEEFH hwaro. Nhasi, LEEFH Foundation yakazvipira kuona varwere veFH nekukurumidza nekuvazivisa nezvenjodzi, kuongororwa uye kurapwa, zvemoyo- kudzivirira chirwere chemwoyo. LEEFH inodawo kutsvagira varwere vangangove varwere, asi zvinobvira zvakaganhurirwa pakubatsira varwere vane index kuzivisa hama dzavo.

Svika

Mukati 1993 iyo StoEH yakavambwa (Nheyo yeKuonekwa kweHereditary Hypercholesterolemia). Kana uine nhengo yemhuri yekutanga, kuburikidza neDNA research, FH yakaonekwa, nhengo dzemhuri dzakasvikirwa zvine mutsindo kuburikidza nekuferefeta kwakarongeka. Nzira yacho yaibvira zvikuru. Panguva yekushanya kumba, ruzivo rwakapihwa uye ropa rakatorwa kuyera cholesterol uye kuongororwa kweDNA. Mukati 2003 nzira iyi 'yakacherechedzwa' sekuongororwa kwevanhu pasi pebasa reCVZ (gare gare RIVM) uye inotsigirwa neVWS. Nekudaro, kuongororwa kwevanhu kwakamira pakupera 2013. Basa rebazi rezvehutano, rekugara zvakanaka nemitambo rakabva razosanganisira kurondwa kwehama dzavanogara vachichengetwa. Uku ndiko kuguma 2013 LEEFH hwaro hwakatangwa. LEEFH inotora kurongeka kwenyika kweFH kuchengetedza nechinangwa che 40.000 vanhu vasina kuwanikwa.

Kubva 2014 kuonekwa kweFH kunowira pasi pe 'insured care'. Saka hapagone kuve nemubvunzo wekuferefeta kwakasimba sezvakaitika panguva yekuongororwa kwevanhu. Izvi zvinodaro nekuti izvi hazviwire mukati mezvirongwa zvakadhirowewa neNational Health Care Institute. Nhengo yemhuri inofungidzira FH ichafanirwa kuudza mubvunzo wekuchengeta. LEEFH saka yakavaka network yedunhu FH hunyanzvi nzvimbo. Vanobatsira index varwere kuzivisa hama dzavo. Iri sebasa rekuwedzera mukuwedzera pakuona kuongororwa kwakaringana uye kurapwa.

Results

Pakutanga, kuongorora kwehuwandu hwevanhu kwakaratidzika kubudirira. Hauzivi here kuti kukundikana kwakajeka chii 2012 zvaifungidzirwa kuti kupararira kweFH 1 on 400 aiva (40.000 vanhu vane FH muNetherlands). Zvichienderana nenhamba idzi, chinangwa chakatarwa chaiita sechinokwanisika; kuongorora 70%, 28.000 FH varwere. Tsvakurudzo itsva mu 2012 yakaratidza, zvisinei, kuti kupararira kwakarurama kweFH muNetherlands 1 on 240 ndizvo. Iyo chaiyo muzana yevarwere veFH vakaongororwa saka yaive yakaderera zvakanyanya (41%). Kubva paruzivo rwuchangobva kuwanwa urwu, zvakaratidzika kuva nhano ine mufungo kupfuuridzira kunzverwa kwavanhu. Zvisinei, kuguma uku kwakanga kwapera 2013 chisarudzo chisingadzoreki.

Mushure mekumira kwekuongororwa kwakasimba, huwandu hwevarwere vakanyoreswa pagore hwakadzikira 78%. Varwere vangangove vakanga zvino vakanga vava nyore kusvika, nokuti basa rokuenda kune vangangove varwere riri pamitezo yemhuri. Mukati 2016 LEEFH saka akasarudza kutaura neVWS zvakare. Izvi nechinangwa chekuwana mvumo uye zviwanikwa zvekuferefeta zvakare. Nehurombo, kuedza uku hakuna kubudirira uye kugona kweLEEFH kunongoperera pakubatsira varwere vane indexer kuzivisa hama dzavo.. Chigumisiro ndechekuti zvakadaro 58% vevanhu vane FH havazivi kuti vane nhaka uye vanogona kuwana makore anoverengeka ane utano nokurapwa kwakafanira.

Kuderedza

1. Hazvisi zvese zvinogona kufanoona. Mari yakamiswa, nepo kudiwa kwekuongororwa kwehuwandu hwevanhu nekuda kwehuwandu hwehuwandu hwakazove hwakakura kupfuura zvaimbofungwa.
2. Unilateral kutsamira pakuwana mari kunoita panjodzi, kunyanya kana zvasvika pakuita 'kudzivirira'- uye anoenda. Nehurombo, mari yekudzivirira ichiri hutsinye nekuti munhu anobhadhara mari yacho haasiye anogara achikohwa mabhenefiti..
3. Zvakakosha kunyatsotsigira uye kuverenga zvirongwa. Apo VWS yakagogodza pamusuwo, ruzivo chairwo nenhamba dzokuratidza kudikanwa zvakanga zvisati zvawanikwa.. Mukupindura izvi, nyaya yebhizinesi yakadhirowewa pamwe nekubatana nekambani yezano Vintura. Iri bhizinesi kesi inoumba hwaro hwekuyedza kutsva kuona kunoshanda kwevarwere veFH.
4. Pakudhirowa nyaya yebhizinesi, kuziva kwakauya kuti kutarisisa hakufanirwe kungobhadharwa pakuferefeta. Muketani imwechete, kuongororwa kwakarurama uye kurapwa kunotevera kunodawo kutarisirwa kwakakwana. Ipapo ndipo chete ndipo panogona kuve nekudyara kunofanirwa kuitwa mukuongororwa kwevanhu kuzadzisa kudzoka kwayakada.

Zita: Janneke Wittekoek naManon Houter
Sangano: LEEFH

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