Chinthu Chovuta Kwambiri Chothandizira Kuyika Popewa, ndi 'bizinesi' yabwino komanso kuwerengera mosamala mtengo ndi zopindulitsa. Kuwonetsa phindu ndi kuonjezera zotsatira za kupewa, gulu lonse la okhudzidwa liyenera kukhudzidwa.

Cholinga

Cholesterol okwera akhoza kukhala cholowa, Family Hypercholesterolemia (FH) kuyitanidwa. Ku Netherlands 1 pa 240 anthu cholowa ichi. Izi zikufanana ndi pafupifupi 70.000 anthu. Mukuwona cholesterol yokwera kwambiri (koyamba) palibe. Izi zikutanthauza kuti munthu yemwe ali ndi FH nthawi zambiri samabwera kwa sing'anga kapena katswiri ndi pempho la chisamaliro. Pokhapokha pozindikira mwachangu momwe mabanja a FH ndi odwala FH omwe sanazindikiridwe angapangire mapu.

Kuzindikira ndi kulandira chithandizo munthawi yake ndikofunikira kwa odwala omwe ali ndi FH. Izi zisanachitike 20^{ali otsimikiza kuti maphunziro omwe aphunziridwa akhoza kuphatikizidwa m'mapulojekiti osiyanasiyana otsatila kuti apange madera odzifufuza okha komanso} Pazaka zapakati, atherosulinosis yayikulu imatha kuchitika mosazindikira. Chifukwa cha ichi pali chiopsezo chachikulu cha mtima- matenda. Pozindikira msanga komanso kulandira chithandizo choyenera, wodwala wamba wa FH amapeza zaka khumi ndi chimodzi zathanzi.

M'zaka zaposachedwa, maphwando angapo ayesetsa kufufuza anthu omwe ali ndi FH. Izi zidapangitsa maziko a LEEFH. Masiku ano, LEEFH Foundation yadzipereka kuzindikira odwala FH msanga ndikuwadziwitsa za kuopsa kwake, matenda ndi chithandizo, kwa moyo- kupewa matenda a mtima. LEEFH ikufunanso kutsata odwala omwe angakhale nawo, koma zotheka zili pothandiza odwala index kudziwitsa achibale awo.

Njira

Mu 1993 StoEH idakhazikitsidwa (Foundation for the Detection of Hereditary Hypercholesterolemia). Pamene ndi woyamba m'banja, kudzera mu kafukufuku wa DNA, FH anapezeka, achibale adafikiridwa mwachangu kudzera mukufufuza mwadongosolo. Njirayi inali yofikirika kwambiri. Paulendo wakunyumba, chidziwitso chinaperekedwa ndipo magazi adatengedwa kuti ayezetse cholesterol ndi kuyezetsa DNA. Mu 2003 njira iyi 'inazindikirika' ngati kuwunika kwa anthu pansi pa udindo wa CVZ (kenako RIVM) ndi ndalama ndi VWS. Komabe, kuwunika kwa anthu kunayima kumapeto 2013. Ntchito ya Unduna wa Zaumoyo, Ufulu ndi Masewera, inali yoyang'anira kalondolondo wa achibale omwe amawasamalira nthawi zonse.. Awa ndi mathero 2013 LEEFH maziko anakhazikitsidwa. LEEFH imatenga mgwirizano wapadziko lonse wa chisamaliro cha FH ndi cholinga cha 40.000 kupeza anthu osadziwika.

Kuchokera 2014 Kuzindikira kwa FH kumagwera pansi pa 'chisamaliro cha inshuwaransi'. Chotsatira chake, sipangakhale funso la kufufuza mwakhama monga kunachitika panthawi yowunika anthu. Izi ndichifukwa choti izi sizikugwera m'makonzedwe opangidwa ndi National Health Care Institute. Wachibale yemwe akukayikira FH adzayenera kunena za funso la chisamaliro. LEEFH yapanga maukonde a madera a FH akatswiri. Iwo amathandiza odwala kuti azidziwitsa achibale awo. Izi ngati ntchito yowonjezera kuwonjezera pa kudziwa matenda olondola ndi chithandizo.

Zotsatira

Poyamba, kuyesa kwa chiwerengero cha anthu kunkawoneka bwino. Mpaka 2012 zimaganiziridwa kuti kuchuluka kwa FH 1 kuyatsa 400 anali (40.000 anthu omwe ali ndi FH ku Netherlands). Malingana ndi ziwerengerozi, cholinga chokhazikitsidwa chinkawoneka chotheka; kuzindikira 70%, 28.000 FH odwala. Kafukufuku watsopano mu 2012 adawonetsa, komabe, kuti kufalikira kolondola kwa FH ku Netherlands 1 kuyatsa 240 ndi. Chiwerengero chenicheni cha odwala FH omwe adapezeka nawo chinali chochepa kwambiri (41%). Potengera chidziwitso chatsopanochi, chidawoneka ngati sitepe yomveka kupitiliza kuwunika kuchuluka kwa anthu. Komabe, kutha izi kunali kutha 2013 chisankho chosasinthika.

Pambuyo posiya kuwunika, chiwerengero cha odwala omwe adalembetsa pachaka chinachepa 78%. Odwala tsopano anali osavuta kuwapeza, chifukwa udindo wofikira odwala omwe angakhalepo uli ndi achibale awo. Mu 2016 LEEFH adaganiza zolankhulanso ndi VWS. Izi ndi cholinga chopezera chilolezo ndi zothandizira kuti mufufuzenso mwachangu. Tsoka ilo, kuyesaku sikunapambane ndipo kuthekera kwa LEEFH kuli kokha pothandiza odwala omwe ali ndi index yodziwitsa achibale awo.. Chotsatira chake ndi chimenecho 58% Anthu omwe ali ndi FH sadziwa kuti ndi obadwa nawo ndipo amatha kukhala ndi moyo zaka zingapo atalandira chithandizo choyenera.

Chepetsani

1. Sikuti zonse zitha kudziwikiratu. Kupereka ndalama kunayimitsidwa, pamene kufunika kowunika chiwerengero cha anthu chifukwa cha kufalikira kwakukulu kunakhala kwakukulu kuposa momwe ankaganizira poyamba.
2. Kudalira kogwirizana pazandalama kumapangitsa kukhala pachiwopsezo, makamaka pankhani ya 'kupewa' ntchito- ndi kupita. Tsoka ilo, kuteteza ndalama kumakhala kovuta chifukwa munthu amene amalipira ndalama si nthawi zonse amene amapeza phindu..
3. Ndikofunika kutsimikizira bwino ndikuwerengera mapulani. Pamene a VWS anagogoda pakhomo, chidziwitso chenichenicho ndi ziwerengero zomwe zingasonyeze kufunikira kunalibe.. Poyankha izi, mlandu wamalonda udapangidwa mogwirizana ndi kampani yaupangiri ya Vintura. Bizinesi iyi ikhala maziko akuyesera kwatsopano kuzindikira odwala a FH.
4. Polemba nkhani ya bizinesi, kuzindikira kudabwera kuti chidwi sichiyenera kuperekedwa pakufufuza. Mu unyolo womwewo, matenda olondola komanso chithandizo chotsatira chimafunanso chisamaliro chokwanira. Pokhapokha m'pamene ndalama zomwe zimayenera kupangidwa powunika chiwerengero cha anthu zidzakwaniritse phindu lake.

Dzina: Janneke Wittekoek and Manon Houter
Bungwe: Chithunzi cha LEEFH

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